The MSS

i am the mss. these are my inspirations,
ponderations, & writings.

evening pause for a passing bird

how beautiful is the early evening bird’s call

when a spring rain took nearly a day, but not all

they fly out of their homes like the children below

they flip and they soar; they chuckle and they bow

they relish the slight gift they’re given for now

searching once more for an earthworm in the ground

as the rain starts again, they lift up; sing goodbye

and they, with bravest hearts, head home through grey sky

And now when I come indoors it is all so silent-I am not carrying a great rush of wheels in my head-yet I am writing-oh and we are very successful-and there is-what I most love-change ahead.

—Virginia Woolf, from a diary entry dated 11 October 1929 (via proustitute)

stranger

i walked alone one day
looking for a stranger
i knew they’d come my way
i knew, i knew that day

i wondered what we’d do
what we’d speak of and see
sounds, shapes, and smells, anew
colors i wished to be

found her across the way
in a storefront she perched
staring, as if to say,
“i see you across the way.”

cautiously, i neared her
keeping a steady pace
i saw, all of a sudden
mine was the stranger’s face.

Bird Poem

*Carolina Wren

“drink your tea” says Eastern Towhee

the Nuthatch asks “to what what what?”

a Warbler informs me “we see”

the Robin calls “tut tut tut”

the Sparrow sings a musical

the Chik-a-dee says “Phoebe”, too

flutelike notes from an Oriole

Gray Catbird’s familiar mew

i blush from the Dipper’s whistle

Tufted Titmouse asks for “peter”

hear a Vireo from the thistle

Its warbles couldn’t be sweeter

Thank God I’m Not Sixteen Anymore

I thought my beauty would always be a wonder

A lovely, exotic frame

A beckon, a call no man could rest under

Nor answer and be the same

I would tire from all the unfailing devotion

An expected, daily trend

My time spent only on receiving emotion

That I’d never yield or lend

I’d move about my day with thoughts of yours truly

Just pretty as a picture

I’d think about the world when it pertained to me

A ghastly and vain creature

Regularly Scheduled Programming

Just wanted to let you all know that I’m going back to my regularly scheduled programming - my writings, thoughts, inspirations, ideas, things, etc.

This is not because I am not constantly thinking of my child’s well-being and health. It is because I am constantly thinking of my child’s well-being and health, and need to go back to thinking about that and other things, simultaneously, for my sanity’s sake. :)

Love you all. Will interrupt the regularly scheduled programming with any updates and news about Blaise Asher Smith - my superhero son.

xo

Blaise and Recovery from Chiari 1 Decompression Surgery

Update #4 - 8/10/2011:

Blaise’s appointment yesterday went really well.

We arrived at the hospital just in time for his MRI at 8:30AM and he was finished just in time for his appointment with Jennifer Marshall, Dr. Glazier’s PA, by 10:15AM.

He did such a fantastic job! The MRI was about 30 minutes long, and the radiologist only had to re-do a picture once (Blaise got a sudden urge to itch his right knee). :)

He explained exactly what he’s been feeling in his legs to Ms. Jen:

  • His knees feel wobbly.
  • Sometimes numb.
  • When he takes steps, he feels off-balance.
  • The back of his legs are painful when he stretches them out.
  • He cannot walk in a straight line, with one foot in front of the other, without feeling like he’s going to fall.

Ms. Jen said the MRI showed that the sarynx (pockets of fluid) in his spine are actually smaller than they appeared in the MRI before surgery, which is a good thing that is way ahead of schedule. They didn’t expect to see a change for some time, and still don’t expect for them to go away completely for months from now (if they do, in fact, ever go away completely). She explained that the problems occurring with his legs/knees could be from his spine adjusting to the CSF flowing properly (we certainly hope so!). She thinks his legs/knees will work themselves out as his neck gets less and less stiff from surgery and he begins to be his more-active, six-year-old self again.

If he is still having problems after he is fully recovered in his head/neck, physical therapy will be next.

Currently, he is still on Ibuprofen around the clock and is expected to remain on it for a few more weeks. After that time, if he continues to have headaches (like he used to, and like he still does) he will be referred to the MUSC Neurology Dept for headache management. I don’t know if that means medicine or different relaxation techniques to prevent the onset of a headache. Right now, he gets one or two headaches a day - sometimes from getting too hot or laughing a lot or dancing with Posie, but mostly he gets a headache when he is about an hour away from his next dose of medicine.

Ms. Jen thinks the headaches are an effect of the surgery, and as his body gets back to normal and gets used to the CSF flowing properly, he should get less and less headaches. That would be awesome.

He will be scheduled for another MRI in the next few months.

He has such a good attitude about it all. He wants to show everyone his scar and hear their “oooh!!”s. He loves being told he’s so brave and tough. Rightly so, because he is!